Posted in lessons learned

Don’t be ashamed to accept defeat

maranatha-pizarras-342561For us parents of special needs children, defeat is one word we would never want to hear. This is because defeat is a negative word. It is the very opposite of victory. So, why would anyone want to accept defeat?

In caring for our beloved child, we have victories and we celebrate those endlessly. But, let’s admit it, we also suffer from defeat. We get defeated by uncontrolled seizures. We get defeated by hypotonia or hypertonia. We get defeated by the unpleasant side effects of medicines our child has to take. And there are times when we are momentarily defeated by our own limitations as parents.

There is only so much we can do for our child. We are not superheroes who have a steady and unlimited supply of energy. We are human beings. We get tired physically and emotionally. We get sad. We get lonely. We get depressed.

I can understand that most of us feel that we have to be positive 24/7. That we can’t show even the slightest hint of discouragement or negative thoughts. We feel we have to be the parents who exhaust all options just to find the cure for our children’s ailment. We convince ourselves that any progress or regress in development that our child shows depend only on us. That it is our fault if he or she hasn’t sit up yet. Or that we’re not doing enough to massage his muscles to make them stronger.

We have to admit that we will not win all the time. We will not be celebrating victories always. There will be times when we will just have to sit down, take a moment and accept that we can only do so much. We should not be ashamed to accept defeat from time to time.

After all, it is not about winning but it is about giving our children all the love we can give. And for them, it is always more than enough.





I am a full-time mom to four beautiful kids -- three girls and a boy. My youngest child, Miguel, has microcephaly. He was diagnosed when he was two months old. Since then, other symptoms surface such as seizures, global developmental delay, low muscle tone and neurological disorders. His doctors have not really determined the disorder causing his symptoms so it's been my quest to do my own research and help his doctors come to a final diagnosis. I started this blog to share with others lessons I've learned along the way.

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