Posted in lessons learned

How I keep organized when caring for my special needs child

It’s not easy raising a child. Double that when you have two. Triple that when you have three, and so on. But when you have a special needs child to care for along with your other children, the difficulty is increased a hundred fold. Yes, it can be tough!

But when I see other moms doing it, I’m inspired. I’ve seen moms caring for not just one special needs child but two. They are super moms! I can only imagine how hectic their daily schedule can be. I have one special needs child and I’m losing my mind at times.



One thing I’ve learned from these moms and from my own experience is BEING ORGANIZED.

The calendar is my best friend. Whether it be a printed one or an app in your electronic device, I keep a calendar in which to put all of Miguel’s appointments.

What I use is the Calendar app in my phone which I synchronize with my other devices such as my laptop and iPad. After entering information in my Calendar, I write all appointments for the month on our family’s white board in the kitchen. Writing them on the board gives me a quick look at those appointments for the month. Once we’ve gone to one appointment, I erase it from the board.

Aside from being organized with the schedule of appointments, I keep a record of all important telephone numbers. I have the

ring-binder-2-1149793-1279x959numbers for all of Miguel’s doctors, nurse assistants, and therapists. I keep these numbers on my phone contact list as well as on the file folder I’m keeping for Miguel.

Speaking of file folder, I began compiling all of Miguel’s tests and doctor’s reports when we started this journey with his microcephaly. I bring it with me every time we have a doctor’s appointment so I won’t have to explain his medical issues over and over again. And I find that his doctors appreciate that I have this file.

In Miguel’s room, I have a board where I pin all necessary forms such as his feeding journal, record of seizures, and medicine schedule. It’s very helpful especially when I am monitoring his feeding and when he has seizures.

It has helped us especially during those times when we needed to call the paramedics. There was one time when Miguel was having seizures and in respiratory distress, the paramedics simply looked at the board and they got all information they needed like what type of seizures he had and what medicines I gave. They didn’t have to ask me a lot of questions. That surely saved us precious time!

I can say it’s all worth the effort.


I am a full-time mom to four beautiful kids -- three girls and a boy. My youngest child, Miguel, has microcephaly. He was diagnosed when he was two months old. Since then, other symptoms surface such as seizures, global developmental delay, low muscle tone and neurological disorders. His doctors have not really determined the disorder causing his symptoms so it's been my quest to do my own research and help his doctors come to a final diagnosis. I started this blog to share with others lessons I've learned along the way.

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