Our family’s journey with microcephaly began when our youngest, Miguel, was born. He was diagnosed when he was two months old.
My pregnancy was uneventful but as soon as Miguel was born, I knew something was wrong with him. He was born with a stridor, a high pitched cry not common among healthy babies. He spent three nights in the neonatal intensive care unit (NICU) of the BC Children’s Hospital because the doctors needed to find out what caused his stridor.
Since the diagnosis, Miguel has undergone several tests and has been in and out of the hospital because of his epilepsy. Although we’ve participated in a genetic testing called genome-wide sequencing, we haven’t really found out any disorder linked to his microcephaly. We’re hoping we’ll find out soon.
Miguel has three older sisters — Sofia, Elaina and Olivia — who love him very much. I am a stay-at-home mom taking care of all four of them. It’s the best job I’ve ever had!
Everyday has been a learning experience for our family. We’ve conquered a few battles and enjoyed some accomplishments. But each day presents us with a new adventure and an opportunity to strengthen our faith and love for each other.
I hope to share with you the lessons we’ve learned along the way and from these, may you find valuable insights into how to face your own battle.