I was lying down in bed with my three-year old daughter Olivia and we were playing with Miguel when she asked me, “Mommy, is he a doll?” I was surprised. I asked her why she thought that about her brother and she said, “Because he doesn’t walk. He doesn’t talk. So, he is a doll.”
Honestly, I was caught off guard. Continue reading “How I explained to my toddler that her baby brother has special needs”
I just finished reading posts from the blog site “Little Zephy’s Mission” and I can’t help but be touched by the resiliency of the parents. I couldn’t stop crying.
I’m not sure if most of you have already come across the story of this beautiful little girl named Zephy but for those of you who have not, please check out her mom’s blog.
Their story reminds me that while most parents have the trait of resiliency, it is the parents of special needs children who have mastered it, I believe. Yes, we have to be brave but most importantly, we have to be resilient because resiliency will help us get over setbacks and move on.
We are not brave all the time but we are resilient always.
How many of us have to clean our child’s G-tube while tears are flowing down our cheeks? How many of us have to control the shaking of our hands because doctors are reviving our child in respiratory distress? And how many of us spend sleepless nights in the hospital watching over our kid hooked to machines? I’m sure you’ll agree that in those times, we are not the bravest though we try to be.
But we are resilient. We bounce back because our children need us.
For us parents of special needs children, defeat is one word we would never want to hear. This is because defeat is a negative word. It is the very opposite of victory. So, why would anyone want to accept defeat?
In caring for our beloved child, we have victories and we celebrate those endlessly. But, let’s admit it, we also suffer from defeat. Continue reading “Don’t be ashamed to accept defeat”
It is tough for my girls Sofia (12), Elaina (8) and Olivia (4) whenever their baby brother has seizures and have to be taken by ambulance to the hospital. I remember the very first time that Miguel had a seizure and we called 911, Continue reading “How my other children cope with their baby brother’s disability”
As I stare at Miguel fast asleep in his crib, I can’t help but look back at our experiences together both good and bad.
When he was born, I remember holding him in my arms for just a few minutes before they whisked him off to the neonatal intensive care unit. He was so tiny and fragile and I could tell immediately that there was something not right. What I distinctly remember was the shape of his head and how I could feel every bone in it. My three older girls were not like that but I thought that Miguel might just be different. There was nothing to worry about. But when the paramedics came to rush him to the Children’s Hospital, Continue reading “Looking back…”
This morning, I woke up and saw Miguel kneeling upright and looked like he was gauging how high the side of his crib is. I was surprised to see him Continue reading “Fighting spirit”