Posted in lessons learned

Lessons learned in caring for a child with microcephaly

TIPS IN CARING FOR A CHILD WITH MICROCEPHALY

Two years of caring for Miguel has taught me a lot about microcephaly and myself.

Here are some of them:

Microcephaly does not mean the end of the world. Like most parents who receive news about their child’s medical problem, I felt hopeless. What will happen now to my child? Will he be able to function normally and be independent? Will he be able to grow up? Or will his life be shortened by this condition? There were a lot of questions and the only answer we received from his doctors was that we just have to wait and see.

Apparently, there are many cases of children with microcephaly which showed that they can grow up normally and function independently. That certainly gave me hope. I knew then that I have to do my best to help Miguel reach his full potential, whatever that may be. It certainly is not the end of the world for us.

Don’t obsess about the size of your child’s head. When we found out about Miguel’s microcephaly, I became obsessed about the size of his head.
Continue reading “Lessons learned in caring for a child with microcephaly”

Posted in lessons learned

Friday Reflection: “This, too, shall pass”

pexels-photo-219998This, too, shall pass.

The saying reminds me that whenever I feel discouraged or depressed, the feelings will go away at some point. And Miguel has been very good at making those feelings pass because he unconsciously would show me his strength in unexpected ways.

When I feel elated because of some accomplishment, the saying helps me realize that whatever achievement I may have can easily be overshadowed by some mistake or Continue reading “Friday Reflection: “This, too, shall pass””