Posted in lessons learned

Lessons learned in caring for a child with microcephaly

TIPS IN CARING FOR A CHILD WITH MICROCEPHALY

Two years of caring for Miguel has taught me a lot about microcephaly and myself.

Here are some of them:

Microcephaly does not mean the end of the world. Like most parents who receive news about their child’s medical problem, I felt hopeless. What will happen now to my child? Will he be able to function normally and be independent? Will he be able to grow up? Or will his life be shortened by this condition? There were a lot of questions and the only answer we received from his doctors was that we just have to wait and see.

Apparently, there are many cases of children with microcephaly which showed that they can grow up normally and function independently. That certainly gave me hope. I knew then that I have to do my best to help Miguel reach his full potential, whatever that may be. It certainly is not the end of the world for us.

Don’t obsess about the size of your child’s head. When we found out about Miguel’s microcephaly, I became obsessed about the size of his head.
Continue reading “Lessons learned in caring for a child with microcephaly”

Posted in lessons learned

Looking back…

As I stare at Miguel fast asleep in his crib, I can’t help but look back at our experiences together both good and bad.

When he was born, I remember holding him in my arms for just a few minutes before they whisked him off to the neonatal intensive care unit. He was so tiny and fragile and I could tell immediately that there was something not right. What I distinctly remember was the shape of his head and how I could feel every bone in it. My three older girls were not like that but I thought that Miguel might just be different. There was nothing to worry about. But when the paramedics came to rush him to the Children’s Hospital, Continue reading “Looking back…”

Posted in MIGUEL'S JOURNAL

Living with microcephaly

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I would say that the first year was the worst with a lot of confusion, shock, anguish and tears.

We were told that Miguel has microcephaly when he was two months old. A doctor in the emergency noticed his small head and referred us to a pediatrician who confirmed that he really has microcephaly. I was sad, shocked and angry at the same time. Continue reading “Living with microcephaly”