2017 was a year of “firsts” for Miguel and our family.
Miguel had his first surgery (getting his G-tube). We finally decided to get the tube because all our attempts to increase his weight through oral feeding seemed to fail. We spent two weeks in the hospital.
Miguel had his first major seizure. It was the first of a series of seizures. That first one lasted for 20 minutes which caused him to have respiratory distress. We were told he stopped breathing on his own for 40 minutes.
Miguel’s first time in the ICU because of respiratory distress and seizures. His anti-seizure medicine didn’t seem to be working in putting his seizures under control.
Miguel’s first time to be admitted to the hospital three times for a week each. We spent more days in the hospital than at home during this month. I started feeling depressed and it was my first time to feel so helpless.
Miguel’s first time to be seizure-free for a month (thanks to Topiramate!). Though he got sick with flu, he didn’t have any seizures.
Our family’s first time to experience some normalcy in our routine. Miguel’s been gaining weight steadily and he’s not had seizures for two months.
The past year truly tested our faith and conviction. But thanks to all our loving friends and spiritual family, we were able to pull through. One Bible text that guided us was what’s written on Psalm 55:22: “Throw your burden on Jehovah (God) and he will sustain you…”
We’re on to 2018. We are hoping for beautiful “firsts” this time for Miguel and our family.