I’ve not written a blog entry nor have I updated my journal for about a couple of months now. It’s not that I lost the urge to write. But because I’ve been busy enjoying this period of calm.
Miguel has been relatively healthy for the past six months. No seizures and no hospital visits (except for that time when his g-tube was accidentally pulled out). We are slowly getting to the rhythm of our routine. I also find myself having more “me time” these days. Time for reflection and meditation.
Looking back to when things seemed to be hopeless, I realize that those dark days made the present brighter. They also made me more content and happy with what we have. I’ve been more convinced that there is no point in wishing that things could be different but instead be thankful for the little blessings that come.
For us with a special needs child, life is living one day at a time. There are only short-term plans. It’s enjoying the moment, appreciating the “now.”
Miguel is turning three in September. Time sure flies fast. He’s not yet walking nor talking. But it’s alright. We know he’ll get there. He will.
(This is a poem written by my 12-year old daughter, Sofia, for her baby brother)
It’s not easy raising a child. Double that when you have two. Triple that when you have three, and so on. But when you have a special needs child to care for along with your other children, the difficulty is increased a hundred fold. Yes, it can be tough!
But when I see other moms doing it, I’m inspired. I’ve seen moms caring for not just one special needs child but two. They are super moms! I can only imagine how hectic their daily schedule can be. I have one special needs child and I’m losing my mind at times. Continue reading “How I keep organized when caring for my special needs child”
I am sad. I cry. I feel alone. I am depressed.
Yet, I get up every morning to cook for my family. I do the laundry. I clean the house. I do grocery shopping. I bathe my small kids. I prepare my older kids’ lunch for school. I talk to friends. I’m busy with taking care of the household. I blog. I read.
During the day when it’s busy and I have lots of things to do, I don’t remember Continue reading “I may be suffering from high functioning depression”
I was lying down in bed with my three-year old daughter Olivia and we were playing with Miguel when she asked me, “Mommy, is he a doll?” I was surprised. I asked her why she thought that about her brother and she said, “Because he doesn’t walk. He doesn’t talk. So, he is a doll.”
Honestly, I was caught off guard. Continue reading “How I explained to my toddler that her baby brother has special needs”
I just finished reading posts from the blog site “Little Zephy’s Mission” and I can’t help but be touched by the resiliency of the parents. I couldn’t stop crying.
I’m not sure if most of you have already come across the story of this beautiful little girl named Zephy but for those of you who have not, please check out her mom’s blog.
Their story reminds me that while most parents have the trait of resiliency, it is the parents of special needs children who have mastered it, I believe. Yes, we have to be brave but most importantly, we have to be resilient because resiliency will help us get over setbacks and move on.
We are not brave all the time but we are resilient always.
How many of us have to clean our child’s G-tube while tears are flowing down our cheeks? How many of us have to control the shaking of our hands because doctors are reviving our child in respiratory distress? And how many of us spend sleepless nights in the hospital watching over our kid hooked to machines? I’m sure you’ll agree that in those times, we are not the bravest though we try to be.
But we are resilient. We bounce back because our children need us.
For us parents of special needs children, defeat is one word we would never want to hear. This is because defeat is a negative word. It is the very opposite of victory. So, why would anyone want to accept defeat?
In caring for our beloved child, we have victories and we celebrate those endlessly. But, let’s admit it, we also suffer from defeat. Continue reading “Don’t be ashamed to accept defeat”
This morning, I woke up and saw Miguel kneeling upright and looked like he was gauging how high the side of his crib is. I was surprised to see him Continue reading “Fighting spirit”